Bailey's results from her MRI came back great. She has no new tumors and nothing has increased in size. She was able to get off of her Sabril, the seizure medicine that treated her initial seizures, infantile spasms. Sabril is awesome, it stopped her seizures almost immediately by slowing her abnormal brain activity. The only downside was that it slowed her normal brain activity as well so for almost a year she's been in a "fog". Now that she is fully weaned off of the Sabril, her real personality is coming out - and she is one high maintenance, silly little girl! Bailey laughs, smiles, plays with toys like any normal little girl her age. She is crawling and cruising around on everything. She could walk if she wanted to but she hasn't gotten up the nerve yet. I'm sure she'll take her first step any day now. She LOVES to be held, actually she wants to be held 24/7 which is impossible and not good for her anyway. If one of us dare walk by her and not pick up that sweet baby we get this face...
and she breaks down into sobs like she is devastated. We try to be tough but we give in more than we should and the second that child is picked up she stops crying instantly and gets a little grin on her face like, "yeah...got them wrapped around my little finger..." Her big show is totally fake!
She has improved SO much since she started therapy. Not that long ago she couldn't even roll over or touch her hands together and now she's all over the place and into everything. Her therapists have been working with her for almost 8 months and they are so excited with her progress and getting to see the "real" Bailey. One even reintroduced herself to Bailey after we were commenting on how her personality is finally coming out (blog post title). She still takes two seizure medicines and she's been seizure free for a while now. She is still delayed verbally so we are trying to work on that.
Caden started tee ball and he really likes it. It's so funny watching them b/c they still really don't know what they are doing. Caden ran from home to second base during his first game. Caden is still obsessed with dinosaurs and has created his own dinosaur superhero/villain named - CADENSAURUS. (Pic of him giving me his Cadensaurus face...)
He's pulled random body parts from different dinosaurs and created his own dinosaur (t-rex red eyes, stegasaurus tail, etc.) He is so smart, he even knows what carnivores, herbivores and omnivores are and what they eat.
Caden and Bailey are starting to play more together. He'll play with her when she's playing w/ a toy and he likes to wrestle her and she gets a kick out of it and tries to climb on him too.
I finally updated the blog layout so it's pretty like everyone else's. Below are random pics of the kiddies.
Bailey smiling, I didn't catch the full smile in time though
Caden and Bailey in the pool, Bailey grinning at her Daddy
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and maybe make your wonderful plans. The Coliseum. The Michelangelo. David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?", you say. "What do you mean Holland?? I signed up for Italy! All my life I dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine, and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people that you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around...and you begin to notice that Holland has windmills...and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy...and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very, very significant loss.
But...if you spend your life mourning the fact that you didn't get to go to Italy, you may never be free to enjoy the very special, the very lovely things...about Holland.
Taken from Children with Visial Impairments Edited by M. Cay Holbrook, Ph.D. Copywrite by Emily Perl Kingsley 1987