All of those prayers are working!! Bailey has been seizure free for over THREE WEEKS!! You can tell she feels so much better and she acts like her old self. She "sings" all the time and she is REALLY loud! The medicine definitely doesn't interfere with her desire to eat. She weighed 17 lbs. 11 oz and was 27.5" long at her appointment with the neurologist last Wednesday. Bailey had her 6 month birthday yesterday. We will take her back to the neurologist on the 9th and they'll perform another EEG to monitor her brainwaves now that the seizures are under control. She'll also start seeing a pediatric eye doctor to monitor her vision since the Sabril can cause damage to her vision.
Caden is as crazy as ever. He's all boy. Caden is finally wearing big boy underwear! He still has a few accidents but he's basically totally potty trained. I didn't think it would ever happen!
Bailey and Caden
Caden giving me his "have you lost your mind"
look when I was trying to take his picture
Bailey singing into a microphone (When we
were at Target Chism came around the corner
with her wearing a princess hat and holding a microphone
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and maybe make your wonderful plans. The Coliseum. The Michelangelo. David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?", you say. "What do you mean Holland?? I signed up for Italy! All my life I dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine, and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people that you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around...and you begin to notice that Holland has windmills...and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy...and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very, very significant loss.
But...if you spend your life mourning the fact that you didn't get to go to Italy, you may never be free to enjoy the very special, the very lovely things...about Holland.
Taken from Children with Visial Impairments Edited by M. Cay Holbrook, Ph.D. Copywrite by Emily Perl Kingsley 1987